Confessions of a Diabetic: Unveiling the Mysteries of Type 1 & 2
Have you ever wondered what it's truly like to live with diabetes? Forget the sugar-coated (pun intended) brochures – here's a chance to hear directly from the warriors on the front lines: people managing Type 1 and Type 2 diabetes every single day.
This uncensored Q&A dives deep into the realities of living with both forms of the disease. We've scoured reputable online communities to gather the questions you might be too shy to ask, and sourced honest, insightful answers from patients themselves. Whether you're newly diagnosed, a seasoned diabetic, or simply curious, this is your chance to gain invaluable insights from the trenches.
Get ready to learn about:
The day-to-day challenges (and victories!) of managing Type 1 and Type 2 diabetes.
Myths and misconceptions debunked straight from the source.
Tips and tricks for navigating life with diabetes, straight from patients in the know.
So, grab a cup of (unsweetened) tea, settle in, and prepare to have your eyes opened to the uncensored truths of living with diabetes.
Q: I'm going to my first 3-month appointment since being diagnosed with Type 2 diabetes. My initial A1C was around 9. Should I request another A1C test? Is there anything specific I should discuss with my doctor?
A: Yes, requesting another A1C test at your 3-month checkup is a good idea to assess how well your treatment plan is working. Additionally, you should discuss your current medication regimen, any side effects, and your blood sugar levels, which seem well-controlled between 100-130 mg/dL. Inform your doctor about the low blood sugar episodes (down to 70 mg/dL) and discuss dietary adjustments or medication changes if needed.
2. Managing False Low Blood Sugar Readings from Dexcom at Night
Q: My Dexcom sometimes shows low blood sugar while I’m sleeping, but when I check, it’s normal. Any tips to avoid these false alarms?
A: False low readings can be frustrating. To reduce these occurrences, ensure your Dexcom sensor is properly calibrated and placed in an area with good blood flow. You might also want to experiment with different sensor sites to see if that helps. If the issue persists, consult with Dexcom support or your healthcare provider.
3. Experiencing Changes After Lowering A1C
Q: For those who have successfully lowered their A1C, what differences have you noticed in your health and daily life?
A: Lowering your A1C can lead to increased energy levels, improved mood, reduced risk of diabetes-related complications, and overall better physical health. Many people also report better sleep quality and a greater sense of control over their health.
4. Tips for Using the POGO Automatic Glucose Monitor
Q: I’m new to the POGO Automatic glucose monitor. Any tips for adding more blood when the device needs it?
A: To efficiently add more blood, ensure your hands are warm to improve blood flow. When the device signals for more blood, gently squeeze your finger from the base towards the tip to encourage a larger drop. Practice good hydration, as well-hydrated blood is easier to draw.
5. Drinking Alcohol with Type 2 Diabetes
Q: How do you manage drinking alcohol with Type 2 diabetes? Any recommendations for safer choices?
A: Moderation is key when consuming alcohol with diabetes. Opt for drinks with lower sugar content like dry wines or spirits mixed with sugar-free mixers. Avoid sugary cocktails and drink plenty of water to stay hydrated. Monitoring your blood sugar before and after drinking is also essential.
6. Understanding Glucose Level Fluctuations
Q: My glucose levels range from 111 to 200 throughout the day. Is this normal for someone newly diagnosed with Type 2 diabetes?
A: While some fluctuation is normal, levels consistently around 200 are higher than ideal. Aim for a target range set by your healthcare provider. Consistent high readings may indicate the need for medication adjustments or dietary changes. Discuss these patterns with your doctor to refine your management plan.
7. Celebrating a Low Wake-Up Blood Sugar Level
Q: For the first time, my morning blood sugar level is 98. Is this a good sign?
A: Yes, a morning blood sugar level of 98 is a great sign of good overnight glucose control. This indicates that your management plan is effective. Keep up the good work and continue monitoring to maintain these levels.
8. Traveling Long Distances with Insulin
Q: I'm planning a 30-hour flight and need advice on how to keep my insulin cool. Any recommendations?
A: For long flights, consider using insulin travel cases designed for extended cooling, such as FRIO packs or specialized cooler bags. Ensure you have backup cooling options and keep your insulin with you in your carry-on to avoid temperature fluctuations in checked luggage.
9. Exercise Routines for Diabetes Management
Q: What types of exercise routines are effective for managing diabetes?
A: A combination of cardiovascular exercises (like walking or cycling) and strength training (using weights or resistance bands) is effective. Aim for at least 150 minutes of moderate-intensity exercise per week. If you have joint issues, consider low-impact activities like swimming or yoga.
10. Finding “Safe” Carbohydrate Foods
Q: What are some carbohydrate foods that won't spike my blood sugar too much?
A: Foods like whole grains, legumes, vegetables, and certain fruits (like berries) typically have a lower glycemic impact. Opt for high-fiber options and pair carbs with protein or healthy fats to slow digestion and prevent spikes. Experiment to find what works best for your body.
Going for My First 3-Month Diabetes Appointment
Question:
I was diagnosed with Type 2 diabetes three months ago with an A1C around 9. Should I ask for another A1C test at my upcoming appointment? Is there anything else I should discuss with my doctor? Currently, I'm on Levemir 30 units once daily, Humalog mix 12 units thrice daily with meals, and Metformin 500mg twice daily. My levels range from 100-130 (sometimes dropping to 70 if I don't eat). At diagnosis, my sugars were 190-230, discovered due to a severe infection requiring surgery. Did they aggressively treat my diabetes because of the infection? My levels now seem well-managed. What should I discuss with my doctor at this appointment?
Answer:
Yes, requesting another A1C test is a good idea to assess how well your current treatment plan is working. You should also discuss:
Any hypoglycemic episodes, especially the drops to 70.
Adjustments to your insulin and medication regimen.
Your diet and any changes needed.
Monitoring your blood sugar levels more effectively.
Long-term diabetes management strategies.
Addressing any side effects or concerns with your current medications.
Dexcom Giving False Low Blood Sugar Readings at Night
Question:
I'm Type 2 and use a Dexcom monitor, but it sometimes shows false low blood sugar readings at night. For instance, it might wake me up at 1am showing 65, but when I check, it's 130. How can I avoid this? It's affecting my sleep.
Answer:
To avoid false low readings:
Ensure your sensor is properly calibrated.
Check for proper sensor placement.
Avoid compression lows by not lying on the sensor site.
Review Dexcom's guidelines for minimizing false alerts.
If issues persist, discuss with your healthcare provider about possible adjustments or troubleshooting tips.
Noticing Changes After Lowering A1C
Question:
For those who have successfully lowered their A1C to healthy levels, what differences did you feel? Especially interested in hearing from those who experienced dramatic drops.
Answer:
Lowering A1C often results in:
Increased energy levels.
Improved mood and mental clarity.
Fewer complications related to diabetes.
Better overall health and well-being.
Improved blood sugar stability.
Less frequent urination and decreased thirst.
Adding More Blood to POGO Automatic Device
Question:
I'm new to using the POGO Automatic glucose monitor. When it shows a blue up arrow and starts a 90-second countdown, indicating it needs more blood, what are the best practices for adding more blood without mistakes?
Answer:
When the POGO Automatic device needs more blood:
Remove your finger and gently squeeze to get a blood drop.
Center the blood drop over the test port.
Repeat if necessary until the test is complete.
Watch the countdown and listen for the beep.
Common mistakes to avoid:
Not squeezing enough blood initially.
Misaligning the blood drop with the test port.
Not waiting for the beep indicating the test is complete.
Managing Alcohol Consumption with Type 2 Diabetes
Question:
I’ve had Type 2 diabetes for a year and am struggling with managing alcohol consumption, especially on weekends when I like to party. My sugar levels spike the next day. Are there any recommendations for drinking while managing diabetes?
Answer:
When managing diabetes and consuming alcohol:
Opt for drinks with lower sugar content, like dry wines or spirits with sugar-free mixers.
Drink in moderation and monitor your blood sugar levels frequently.
Stay hydrated with water between alcoholic drinks.
Eat a balanced meal before drinking to avoid spikes.
Discuss with your healthcare provider for personalized advice and safe consumption guidelines.
Understanding Blood Sugar Levels with Type 2 Diabetes
Question:
I was recently diagnosed with Type 2 diabetes and my glucose levels fluctuate between 111 and 200. My glucose monitor says I'm in a normal range at 176 four hours after eating, but Google suggests it’s high. What’s considered normal?
Answer:
For Type 2 diabetes:
A fasting blood sugar level of 70-130 mg/dL is generally considered normal.
Two hours after eating, blood sugar levels should be less than 180 mg/dL.
A level of 176 four hours after eating might still be higher than ideal. Aim for consistent readings within target ranges. Regular monitoring and adjustments with your healthcare provider can help achieve better control.
Excited About a Low Morning Blood Sugar Reading
Question:
For the first time, my morning blood sugar level was 98, whereas it usually exceeds 130. I usually go to sleep with levels like 140 or 170 and wake up to 160 or 190. What might have contributed to this improvement?
Answer:
A morning reading of 98 is excellent. Factors contributing to improved morning blood sugar:
Better evening meal choices with lower carbs.
Improved medication adherence.
Regular physical activity.
Consistent monitoring and adjusting insulin doses as needed.
Reducing stress and getting adequate sleep.
Long-Distance Travel with Insulin
Question:
I’m traveling from New Zealand to Budapest, which is a 30-hour flight. I’m looking for recommendations for cooler packs or bags to keep my insulin safe for such a long duration.
Answer:
For long-distance travel with insulin:
Use specialized cooler packs designed for insulin, such as Frio packs, which can keep insulin cool for extended periods.
Pack extra supplies and split them between carry-on and checked luggage.
Inform airline staff and request in-flight refrigeration if needed.
Ensure you have a letter from your healthcare provider explaining your need to carry insulin and supplies.
Exercise Routine for Diabetes Management
Question:
What does everyone do for exercise to manage diabetes? I currently use weight machines three times a week and walk for 30 minutes on a treadmill after workouts. What other cardio exercises can I add, considering I have a weak ankle?
Answer:
Effective exercises for managing diabetes:
Swimming or water aerobics, which are low-impact and gentle on joints.
Cycling, either stationary or outdoor, which provides good cardio without much ankle strain.
Elliptical machines, offering a full-body workout with minimal joint impact.
Yoga or Pilates, which enhance flexibility and strength without high impact.
"Safe" Carb Foods for Diabetes Management
Question:
I find it challenging to manage my carb intake without spiking my blood sugar. Are there any carb foods you consider "safe"? For instance, I managed to eat a Joseph’s wrap with 12g carbs without exceeding 200 blood sugar.
Answer:
"Safe" carb foods that typically have a minimal impact on blood sugar:
Non-starchy vegetables like spinach, broccoli, and cauliflower.
Whole grains in moderation, such as quinoa or barley.
Low-carb fruits like berries (e.g., blackberries, raspberries).
Legumes and beans in controlled portions.
High-fiber foods that slow glucose absorption.
Is Red Meat Bad for Blood Sugar?
Question:
Is red meat bad for blood sugar levels? My relative with diabetes used to eat a lot of goat meat and sweets and is now confused about red meat’s impact.
Answer:
Red meat in moderation can be part of a balanced diet for diabetes management. It’s rich in protein and nutrients but should be:
Lean cuts to reduce saturated fat intake.
Cooked healthily (grilled, baked, or broiled, not fried).
Balanced with plenty of vegetables and whole grains.
Excessive red meat consumption, especially fatty cuts, can contribute to cardiovascular issues, so moderation is key.
Feeling Misunderstood About Diabetes
Question:
Does anyone else feel like non-diabetics never fully understand what you're going through? I’m Type 1 and find it hard to explain how I manage my condition because it’s so specific to my body’s reactions.
Answer:
Yes, many people with diabetes feel misunderstood by those without the condition. Tips to help:
Connect with diabetes support groups where others share similar experiences.
Educate close family and friends about diabetes to improve their understanding.
Be patient and communicate clearly about your needs and how they can support you.
Remember that your unique management strategies are valid and important for your health.
Feeling Unwell After Controlling Blood Sugar
Question:
After years of poor blood sugar control, my levels are now in range thanks to the Medtronic Minimed 780 pump. However, I feel extremely tired, weak, and sometimes have blurry vision. Is this normal?
Answer:
Sudden changes in blood sugar control can cause your body to adjust, leading to symptoms like fatigue and weakness. This adjustment period is common:
Ensure you’re eating balanced meals and staying hydrated.
Monitor for other potential issues, like electrolyte imbalances.
Discuss these symptoms with your healthcare provider to rule out other causes and adjust treatment if necessary.
Fast Changes in A1C Levels
Question:
I’m 15 weeks pregnant and Type 1 diabetic. After hospitalization for uncontrolled diabetes, my A1C dropped from 11% to 10% within weeks. How quickly can A1C levels change?
Answer:
A1C reflects average blood glucose levels over about three months. Significant changes within weeks indicate improved daily glucose management but:
Regular monitoring is crucial during pregnancy.
A consistent decrease in daily blood glucose will gradually lower A1C.
Work closely with your healthcare team to maintain optimal levels for your and your baby’s health.
Is it okay to have a carby meal every two weeks if I dose right on bolus and basal?
Answer:
It can be okay to have a carby meal occasionally if you dose correctly with bolus and basal insulin. However, it's essential to monitor your blood sugar closely and be prepared to adjust your insulin doses as needed. Consistency in monitoring and adherence to your diabetes management plan are key.
Frustration with Blood Sugar Spikes from Fruits
Question:
I love apples and strawberries, but they spike my blood sugar so much. Is there any way to enjoy these fruits without experiencing such spikes?
Answer:
Fruits like apples and strawberries can spike blood sugar due to their natural sugars. To enjoy them with less impact:
Pair them with protein or healthy fats to slow down the sugar absorption.
Opt for smaller portions.
Consider other low-GI fruits like berries.
Monitor your blood sugar levels closely to understand their effects on your body better.
Unusual Blood Sugar Fluctuations After Switching to Long-Acting Insulin
Question:
After switching to long-acting insulin for my type 1 diabetes, I've noticed unusual fluctuations in my blood sugar levels, including higher and prolonged peaks. Has anyone experienced similar issues, and why might this be happening?
Answer:
Transitioning to insulin can sometimes lead to unexpected changes in blood sugar levels as your body adjusts. Factors such as insulin dosage, timing, diet, and other medications can influence these fluctuations. It's essential to discuss these observations with your healthcare provider to determine the best course of action and ensure proper diabetes management.
Insights on Foods from Continuous Glucose Monitoring (CGM)
Question:
What foods did you discover affected your blood sugar levels the most after starting CGM? Were there any surprising revelations?
Answer:
CGM can provide valuable insights into how different foods impact blood sugar levels. Common findings include:
High-carb foods causing significant spikes.
Fatty or protein-rich foods leading to delayed rises.
Individual sensitivity to certain foods.
Monitoring these patterns can help you make informed choices about your diet and diabetes management.
Support for Family Members of Type 1 Diabetics
Question:
My husband is a type 1 diabetic, and I'm looking for support resources for family members of those with diabetes. Do you know of any groups or communities that offer support for us?
Answer:
Support for family members of type 1 diabetics is crucial. Look for online or local support groups specifically tailored to families of diabetics. These groups can offer valuable advice, emotional support, and shared experiences to help you navigate your role in supporting your loved one.
Preparing for a Colonoscopy with Diabetes
Question:
I'm on an all-liquid diet preparing for a colonoscopy, and I'm surprised that my blood sugar levels haven't spiked as expected. Has anyone else experienced this, and what could be the reason behind it?
Answer:
It's not uncommon for blood sugar levels to behave unexpectedly during a colonoscopy prep. Factors such as the type of liquids consumed, individual insulin sensitivity, and other metabolic factors can influence blood sugar levels. It's essential to follow your healthcare provider's guidance and monitor your blood sugar levels closely during this time.
Americans Living with Diabetes in Japan
Question:
Are there any Americans living in Japan with diabetes? I'm curious about your experiences managing diabetes in a different country.
Answer:
Living with diabetes in a different country can present unique challenges. It's helpful to connect with others who have similar experiences to share tips, insights, and support. Online forums or local expat communities can be valuable resources for connecting with others in similar situations.
Adjusting Diet for Type 1 Diabetes
Question:
I've been struggling with my diet since being diagnosed with type 1 diabetes. Any suggestions on adjusting my diet to better manage my blood sugar levels?
Answer:
Adjusting your diet to manage type 1 diabetes can be challenging but essential for your health. Focus on:
Eating a balanced diet rich in whole foods, vegetables, lean proteins, and healthy fats.
Monitoring your carbohydrate intake and spreading it evenly throughout the day.
Limiting sugary and processed foods.
Working with a dietitian to create a personalized meal plan that meets your nutritional needs and helps you manage your blood sugar levels effectively.
Experience with XigDuo for Type 2 Diabetes
Question:
Has anyone experienced side effects with XigDuo (10/1000) for type 2 diabetes? I'm experiencing frequent urination and low blood sugar despite not eating many carbs. Should I consider switching back to plain metformin?
Answer:
Experiencing side effects with a new medication like XigDuo is not uncommon. It's essential to discuss these symptoms with your healthcare provider to determine the best course of action. They may adjust your dosage, switch medications, or explore other options based on your individual needs and tolerances.
Unexpected Billing for Diabetes Check-Up
Question:
I received a bill for a routine check-up with my endocrinologist, which used to be considered preventative and covered by insurance. Has anyone else experienced this, and how did you handle it?
Answer:
It's frustrating to receive unexpected bills for routine check-ups, especially when they were previously covered by insurance. You can try appealing the decision with your insurance provider or discussing payment options with your healthcare provider. It's essential to understand your insurance coverage and advocate for yourself when facing unexpected medical bills.
Concerns About Rapid Weight Loss in a Diabetic Father
Question:
My father has type 2 diabetes and has been losing weight rapidly, despite no major changes in his diet or medication. Should I be concerned about this, considering his family history of pancreatic cancer?
Answer:
Rapid weight loss in someone with type 2 diabetes can be a cause for concern, especially with a family history of pancreatic cancer. It's crucial to encourage your father to see his healthcare provider for a thorough evaluation to determine the underlying cause of his weight loss and address any potential health issues.
Considering Ozempic for Type 2 Diabetes
My doctor is recommending Ozempic for my type 2 diabetes, but I'm nervous about starting a new medication
Answer:
Starting a new medication can be intimidating, especially when it involves injections. Ozempic (semaglutide) is a type 2 diabetes medication that can help lower blood sugar levels and, in some cases, promote weight loss. Some common side effects include nausea, vomiting, and diarrhea, especially when first starting the medication. However, these side effects often improve over time.
It's essential to discuss your concerns with your healthcare provider. They can provide more information about how Ozempic works, what to expect when taking it, and whether it's the right choice for your diabetes management plan. They can also address any specific concerns you may have about injections or side effects.
Continue reading Diabetic Patients Questions (Part 3)
Disclaimer: The information and questions/topics provided in this article are for educational purposes only and are not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always consult with your doctor or other qualified healthcare provider before making any changes to your diet, exercise routine, medication regimen, or before undertaking any new health treatment. We have collected some questions from reputable online communities like Reddit to understand the concerns and experiences of people living with diabetes. This content is not a replacement for professional medical guidance.
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